Thursday, May 21, 2015

Falling in Love

Time is a funny thing - when we first got Joy's diagnosis, five months seemed like a long time to carry this child I knew I couldn't keep.  Now, a few years later, I started to think that five months was really quite brief and that I was mentally exaggerating this time in my life.  But now it's been over a month since I've posted here, and it feels like a long time...then I realized that I started writing here on Joy's diagnosis day, so I was pregnant during all these days that have passed since I've started the blog.  I guess when you're living life day by day, five months really does last awhile!

So anyway, as soon as we made the decision to carry Joy, I knew this would be a difficult and unique experience for me.  Maybe that's an understatement? What I mean is that I had been in other challenging and uncomfortable situations with foreign travel or life decisions, but most of these were places that I had put myself, so I at least felt the illusion of control.  But in carrying Joy, there was no such illusion! 

During these months, I had so many prayer requests.  I did pray for myself and for Joy, but there were many times when I just didn't have the words.  I was (and am) so grateful for those around the country whom I knew were interceding on our behalf.   Though we would have loved nothing more, throughout this time, we had a sense that God's will was not to heal Joy.  I believe that one must be careful in saying we know God's will, and I don't believe that He couldn't heal her, but just that He would not in this situation.  That might sounds kind of harsh, but as we prayed and others prayed for us, God was beyond faithful to us and we saw Him in ways we never could have imagined. (You'll have to keep reading to hear more on that...)

When I first got Joy's diagnosis, I thought I would just wait out these five months as my duty to God and my daughter and then be happy when they were over. But as time passed and Joy's birth grew closer, that changed. Like any pregnant mother, I began to get to know my baby and I fell in love with her.  Joy was a mover and a shaker - she was always kicking and moving and letting her presence be known.  It's as if she was saying "I'm not going to be here for long, but I'm going to make the most of the time I do have!".

So as my due date (July 20) approached, though I was more than ready not to be pregnant anymore, I was filled with dread as I knew it most likely meant saying goodbye to my baby.  The last few weeks were a roller coaster.  It is common for mothers who are carrying anencephalic babies not to go into labor on their own (the speculation is that the babies don't produce the hormones to send a mother into labor and their soft heads also don't have the ability to apply pressure to the cervix).  So I wasn't surprised when July 20 came and went with no sign of a baby.  I also wasn't surprised that my blood pressure was up at my weekly check up - my high blood pressure had caused me to be induced a week early with Liam.  So I was mentally prepared for an induction at 41 weeks, but much to my surprise, my blood pressure was back to normal. So we kept waiting...up and down...up and down...

The Maternal Fetal Medicine Doctor I had consulted with was prepared to let me go to 43 weeks before inducing labor, but as I approached 42 weeks, the midwives and I decided that it would be best for me, mentally and physically, to have an induction at 42 weeks.  I think the waiting game at the end of pregnancy is always stressful, but this had an extra element of stress. I felt like a ticking time bomb!   Although part of me was not ready for to set an end date, (can you ever really be ready for an event like that?) I had a sense of relief and peace, and knew it was time to get ready to meet our daughter...

Wednesday, May 20, 2015

A Sad Farewell

[This is more than slightly off topic and rather lengthy, but since this is my little corner of the internet, I decided it's okay.  I probably won't even notice if you skip this post. I also plagiarized myself and took parts of this post from a post I wrote for my old blog years ago. So if it seems familiar to you, that's why! ]

Last weekend (okay, a couple of weeks by the time I finished this post!), I made what was probably my last trip to one of my favorite places in the world – JBM (Joseph Badger Meadows Camp and Conference Center). JBM is a camp that I attended as a child, and then volunteered at and worked at as a teenager into my early twenties. I did everything from being a counselor to painting fences to working in the kitchen and even served as the assistant summer camp director for a summer or two.  Even after I entered the "real world," I would take a week off of my job and volunteer at JBM for a week.  So, needless to say, I have a lot of fond memories of the place.
Unfortunately, the Presbytery that owns JBM announced this winter that it would be putting the camp up for sale. Thankfully, one of the pastors in the Presbytery is a former JBM staff member and worked hard to ensure that those of us who loved it would be able to say farewell.  And so May 2 was marked on my calendar for months and I approached the day with both dread and anticipation.
Driving up that gravel road into camp was almost surreal.  Not much had changed on the property in the 15 (yikes!) years since I worked there.  Of course, in lots of other ways, nearly everything has changed both in my life and the life of the camp.  But the old farm house still smelled the same, the paths took the same route through the woods, and the cabin doors still made the same slamming sounds.  As I walked throughout the camp, my mind was filled with memories of the time I spent there. Though there are plenty of funny stories and inside jokes to think about (and a few of those did come to mind), it was more of a general sense of reliving a period of time - a sense of remembering an old friend and the things we used to do together.  Or maybe like an old movie reel with continuous but somewhat fuzzy clips playing of faces and places - images of gathering in the industrial kitchen on staff night, silliness at the pool, traipsing through the fields and woods, quiet moments in the chapel in the pines, and hours spent on front porch cabins. It was almost like attending the memorial of a loved one - I was filled with sadness at what had been lost, but great happiness in remembering the time we spent together, both specific times and the general feeling of being at JBM.
I debated whether or not I wanted to take Liam with me to the JBM farewell.  Part of me wanted to share this special place with him, but the selfish part of me wanted to have my undivided attention to give to reliving my days at JBM.  Through a long chain of events, it ended up that he pretty much had to come with me, and I'm so glad it worked out that way.  It was so fun to see him discovering one of my favorite places - I was actually able to see it with new eyes through his wonder of hiking through the woods and questions about how camp worked and what we did there.  On our way home (and several times since) he has said "I'm so sad that JBM is closing. It is so fun there...I wish it didn't have to close."  Me too, buddy, me too!
Some (or many) of you have never been to JBM. So what does any of this have to do with you? Well, in thinking and rethinking all of this, I've realized a couple of things that are significant to my life now, and might be applicable to anyone, whether you not you've been to JBM or perhaps have a "JBM" in your life that has a different name and a different look.  

As I was anticipating my visit and pondering the good ol’ days at JBM, I was trying to figure out what made it such a special place to me. To a stranger looking around, it probably appears as a few hundred acres with a barn, a swimming pool, several other modest buildings, open fields, and wooded areas – nothing special. But to me (and many others), it is more than the sum of its parts. Looking back, it was a formative time and place in my life, in many ways. During the countless days I spent there, lots of memories were made. I could tell you stories of late nights around the campfire, silly songs and skits, canoeing down the Allegheny and spending the night on an island during a giant thunderstorm, mass producing s'mores, hours spent trying to think of indoor fun during summer rain, and meaningful devotions. 

So my first "life lesson" for myself is that memories can be made (and often are) in ordinary places.  JBM is lovely, but it's no luxury seaside retreat or exotic adventure.  Let's be honest - it was on the rustic side of the scale, with thin foam mattresses and spiders in the shower. But that didn't keep us from loving it!  I was actually a little nervous when I took Eric to JBM for the first time, because I realized that I spoke so glowingly of camp that he might be expecting more than what first meets the eye. I love to travel and I've done my share of foreign traveling, so I think I'm tempted to dream of the day when we can again go on foreign adventures or lounge on a pristine beach.  But in the meantime, precious memories can and will be made in the backyard; at the park; on the shores of Lake Erie.  I don't want to overlook these ordinary days and places in anticipation of something or somewhere "better" or "more exciting".


But, somehow, it’s more than the memories themselves that make JBM what it is to me. I also made friendships there that I still treasure today. It was an important time in my life. JBM was my first job, a place where I learned lots of new skills, from building a porch to belaying to planning and helping to lead a week of camp. In the process I learned a lot about responsibility, leadership, and decision making. I think foremost, JBM was a safe place; the first place outside my family where I experienced true community. High school can be (and sometimes was for me) a rough time on the self-esteem, but JBM was a place where I felt comfortable being myself; it helped me to come out of my shell. I had friends and mentors there who liked me for who I was, which in turn helped me to embrace who I was, quirks and all.  It epitomized the word "community". 

And so I've realized that JBM taught me the importance of creating community - friendship, acceptance, shared memories.  While my physical circumstances have changed and I no longer have weeks to spend in the woods with my friends, my desire (and others' too I suspect) is still to be connected to people: to live life together.  I want to be intentional about creating a true community in the midst of the places and people with whom I regularly interact. 

Those days and weeks of summer were seemingly endless. In fact, we often wished our time away – "how long until lights out?" or “only a few more hours until peace and quiet and a staff trip to Quaker Steak.” But soon enough, the week was gone, and then the summer. And even after the summer was over, there was the promise of another summer of fun. But like most good things, it came to an end. The responsibilities of a grown-up life came calling, and it was time to replace playing in the sun with internships and jobs.  And whaddya know - now I regret wishing those days away. I didn't know just how great of a thing I had.


But guess what? I do the same thing now!  I find myself counting the hours until bedtime, or until Friday, or until everyone is out of diapers.  Thankfully I'm more becoming more aware of this tendency and trying to break myself of it. I'm not trying to say that you should enjoy EVERY minute of EVERY day - life isn't all sunshine and puppy dogs. But when I actually stop and think about it, our summers at camp weren't all perfect either. There was plenty of rain, a little vomit, difficult campers, and poison ivy.  That barn in the picture above? I pretty much hated spending time in there, but we did nearly every day!  But in my mind, I remember my time at JBM with nothing but fondness.  I have a suspicion that the same will be true of this period of life. The sleeplessness, the messy house, and the out-of-control behavior will fade from my memory, and I will remember this as such a sweet period of time.  I must be getting slightly more wise in my old age (haha!) because I am trying to slow down and treasure those moments of sweetness as they happen - a toddler's chubby fingers in mine; deep belly laughs from both boys; the simple fun of playing a board game with a preschooler.  Because I know that one day I will wish I could return to these simpler days in the same way I'd like to revisit the days of JBM, I'm striving to enjoy them to the fullest right now. (Note that I said striving, not always successfully!) 

There is still a deep sadness within me that another generation will not grow up knowing the simple beauty and community of Joseph Badger Meadows, but I'm grateful for the memories I have and the lessons I've learned from this special place.

Whether you've been to JBM or not, I hope you can relate to something in this post. I'd love it if you'd leave a comment with your thoughts on your special place, or a favorite memory at JBM. 

PS In all seriousness, if you know of an organization in eastern Ohio or Western Pennsylvania that is looking to open a camp, let me know!  It's the prayer of my heart that JBM will continue as a place where kids and adults can experience fellowship and draw closer to God!

Tuesday, April 21, 2015

For Better or Worse

Today is Eric and my 8th wedding anniversary...or is it "Eric's and my"?  Okay, today is our 8th wedding anniversary! Haha.  

In Sunday school this week, we watched a video on family and marriage, and they interviewed a bunch of couples.  One of the questions they asked was "Did you know what you were saying yes to when you got married?".   The question was answered with a smile and a resounding "No" by most couples.  I was actually reflecting on the same thing last year on our anniversary.  Though we wholeheartedly meant our vows when we said them and went into our marriage knowing that not every day would be puppies and rainbows, we had no idea what the years would bring us.  I never would have guessed that in five years, we would go from this:


to this:
(By the way, both were unusually gorgeous days, Pittsburgh weather-wise!)

I hesitate in categorizing Joy's life as "worse," as there was definitely good that came out of her short existence, but I also feel pretty safe in saying that it's hard to categorize the death of a child as "better."   [Of course, I'm not suggesting that we're the only ones to experience the "worse" part of "for better or for worse."  Just thinking of a close circle of friends, I can think or couples who have faced infertility, cancer, the death of a parent, and a devastating house fire.  I'm sure none of those couples stood at the altar and imagined those difficulties in the first decade of marriage.]

Though we had no idea what the future held when we said "I do," I'm glad that Eric has been the one to walk with me through this.  I've read that men and women tend to grieve quite differently, and that has been true for us.  Of course, our journey has not been without its bumps, but I think we have complemented each other well as we have processed our loss.  I tend to be more introspective and quiet (though this blog certainly implies otherwise!) while Eric is able to compartmentalize things (in a good way!) and is much more willing to engage others in discussion about our situation.    He truly was a solid rock for me as I dealt with the daily reality of carrying a child that we knew would not live.  Most importantly, his firm conviction of and reliance upon God's sovereignty even in the midst of our difficult situation helped me to cling to those same truths even when they didn't match my emotional state at the time. 

So, happy anniversary, my dear. I have no idea what other "better and worse"s (wow, this post is full of questionable grammar!) our future will bring, but I'm glad we will weather them together.

Friday, April 17, 2015

Magnolias

[I'm getting ahead of myself again, but wanted to write this post while the magnolias were blooming.]

Magnolias remind me of two of my favorite people, both of whom are in heaven: my Grandma Miller, and Joy. I'll let my grandma's words speak for herself from a letter she sent me: "Grandpa and I want to do something in Joy Marie's memory.  I had thought of having a magnolia tree planted on your property.  It seemed appropriate because it is such a beautiful and delicate flower and we look forward to its blooming each year even though we know we be able to enjoy the blossoms for only a short time." 
After some discussion, we decided that there just wasn't a place in our already tree-filled yard to plant another tree.  We literally were going to have to cut a tree down to plant a new one, which seemed silly.  They ended up buying us a beautiful matching set of a necklace and keychain with Joy's footprints engraved on them instead.

But I'm kind of happy with the way the tree saga turned out. Because now instead of having a single magnolia tree planted in Joy's honor (and the responsibility of keeping it alive), I now think of every magnolia tree that I see as Joy's tree (and my grandma's too!),  Strangely enough, when I worked downtown, I walked past this pair of very realistic magnolia tree sculptures  a block from where I worked at Heinz Hall: 
Each time I see those pretty pink blooms I'm reminded of Joy's short but lovely life. So this spring (or anytime if you're on Penn Avenue), when you see a magnolia tree, join me in remembering our sweet girl and being reminded that life's value isn't measured by its length!

Thursday, April 16, 2015

What's in a name?

After we found out that our baby was a girl, one of our next items of business was giving her a name.  When we were expecting Liam, we didn't know if he was a boy or a girl, so we had both a boy and girl name picked out.  We only briefly considered giving that "leftover" name to our first daughter, but decided that we would rather save that name to use if we were ever blessed with another daughter in the future.  Some people might disagree with that decision, but it felt right to us.  I think that if we had known before the diagnosis that she was a girl and had already given her that name, it would have been different.  But we felt that our special girl deserved a special name.

Honestly, I don't remember exactly how we came up with the name Joy. We're pretty sure that it was my idea, because Eric remembers that he didn't like it at first! When I suggested the name Joy, I was thinking of a kind of generic definition that had to deep with a type of deep satisfaction that went beyond circumstances.  Joy's middle name is Marie, which is derived from the word "bitter."  It also happens to be my mom's middle name.  I loved the combination - a sad happiness. Bittersweet, if you will, which is one of my favorite words.  After a few days of debate, it was settled. The little one growing inside of me was Joy Marie.

While I think her name suited her from the beginning, it was cemented in my mind as perfect during her memorial service.  During the eulogy, our pastor used this definition of joy, one that I have heard him repeat several times since: "Joy is the sense of peaceful and exuberant well-being that comes from the knowledge that God's purposes are being worked out in one's life."  Isn't that beautiful?  Because I happen to think that that's exactly how her life was - joyful! I hope that you'll agree as I continue to tell her story...

Sunday, April 5, 2015

...From Life's First Cry to Final Breath...

Happy Easter!  I'm going to jump ahead a little in the story, because on this day of Christ's resurrection, my mind was frequently on my sweet Joy.  Don't worry, I'll backtrack eventually...

I'll confess that prior to Joy's life and death, I naively (substitute foolishly or stupidly or shortsightedly here if you prefer) never gave much thought to heaven or the afterlife. I was young and healthy and optimistically hoped that I had years to go on this earth. You know - heaven is great for grandmas and grandpas but I was more concerned with the goings on in the here and now!  

Of course, having a child die makes you ponder things like heaven much more seriously.  In theory, I was always grateful for the promise of eternal life, but suddenly it meant so much more. Heaven was no longer a theoretic place for me someday in the distant future, but a promise of a restored body and eternal life for my own child! 

In many ways, parenting and marriage have shown me just how selfish I really am!  But in this particular case, the opposite is true - I am even more glad for God's mercies towards my daughter than for myself.  I'm so thankful for the cross of Jesus Christ in which there is life and hope and restoration for my sweet little girl. (I guess maybe that's selfish too - I feel better knowing that she will be whole and healthy?)

These thoughts are often on my mind whenever I hear teaching on or ponder Christ's glorious gift of eternal life.  Our closing hymn today was one by my favorite songwriters, Keith and Kristyn Getty, "In Christ Alone."  The last verse says:
 "No guilt life, no fear in death - 
  This is the pow'r of Christ in me;
  From life's first cry to final breath, 
  Jesus commands my destiny.
  No pow'r of hell, no scheme of man
  Can ever pluck me from His hand;
  Till he returns or calls me home - 
  Here in the pow'r of Christ I'll stand. "

The line about life's first cry and final breath always gets me - I naturally think of Joy's painfully brief life.  If you happen to look closely at me during church when we sing this song, you might see tears in my eyes during this verse.  But what comfort - every moment of her life; every detail of her destiny, like yours and mine, was commanded by Jesus.  So on this Easter, I am grateful for the power of the cross, which allows me to have no fear in death, whether my own or that of those I love who know and serve the Lord.  Happy Easter indeed! 

Monday, March 30, 2015

Strengthen the faint-hearted

The months before Joy's diagnosis were a time of transition for our family. We had recently left the church where we met and got married and where I had attended for 10 years, and had begun attending a smaller church closer to home.  Eric's reasons for leaving were largely theological, while I was seeking a local community of moms.  (I always joke that this makes Eric sound super-spiritual and me pretty shallow, but it is what it is!)  I had plenty of friends, but many of my friends were either too far away to get together for an hour or two to play and visit, or were just in a different stage of life.  After over a year of being a stay at home mom, I was feeling the need to connect with other SAHMs.

I had been invited to join a Tuesday morning Bible study at our new church.  I really wanted to join, but had a previous commitment, so I deferred.  I was re-invited just as my previous Tuesday commitment was ending, and so I cautiously joined. My introvert personality tempted me to withdraw on a day-to-day basis after such a difficult life event, but there was a part of me that was anxious for community.  So it was with mixed emotions that I joined the group. At this point, I had known about Joy's diagnosis for a few months - it was about halfway between her diagnosis and her birth.

As someone who is generally self-sufficient and prefers to keep her emotions under control, it was a vulnerable time. But these ladies were so generous, kind, and gentle with me.  I know it sounds cheesy, but I truly believe that these new friendships were a gift from God.  I had amazing support from family and other friends as I carried Joy, but there is something unique about the daily, ordinary encouragement I experienced from these new friends.  In many ways, it was remarkably unremarkable - play dates at the park, conversations around the kitchen table as our kids snacked.  But these moments remain vivid in my mind, and mean more to me, both then and now, than my friends may have realized.  Looking back on it, it serves as a reminder to me how just being real and being present to other can be a big deal, even if it doesn't seem like it at the time. 

I am grateful for all the people in my life, both then and now, who weren't afraid to mention Joy's name or to ask how I was doing (and mean it).  I am often guilty of being scared of saying the wrong thing and opting to say nothing instead, and I know many others feel the same.  And yes, sometimes people did say things that weren't all that helpful (just being honest here!). But at least from my perspective (particularly in the situation where the crisis was such a visible elephant in the room!), I much preferred that someone say something, even if it was awkward, than to say nothing at all.  It meant a lot for someone to take the risk of broaching the topic to me.

Just a month or two after I joined this Bible study, I was asked how I felt about having a prayer shower for Joy. I was nearly flabbergasted!  This was something I had read about in my hours of internet research and thought it was a lovely idea, but didn't feel comfortable asking my friends of family to do...it just seemed to much to ask.  And here were these ladies I had only known for a few months, who wanted to bless me in this way. It was the first, but certainly not the last time that the words of Ephesians 3:20 rang in my head: "Now to Him who is able to do far more abundantly beyond all that we ask or think..."

So a small group of gathered on a Saturday morning for a simple but beautiful celebration of Joy's life.  Knowing that Joy wouldn't have all the other celebrations of a typical child, such as birthday parties or a baptism, made this day that was all about her so special. There was delicious food, good conversation, and even little favors for the guests.  I received some lovely keepsakes - journals, a picture that hangs in our living room, etc.,  - that I still treasure, but the thought and love that was behind it are lovelier still.  And being that it was a prayer shower, there was a wonderful time of praying for me and for Joy and for the days to come. Here's the framed picture that the group got for me.  Interestingly, it now hands in our living room right where I took my monthly maternity pictures. 

Our pastor ends nearly every sermon with a benediction based on 1 Thessalonians 5 (I didn't know it was from there until I sat down to type this and looked it up!).  He says:
And now go out into the world in peace;
Be of good courage;
Render to no man evil for evil;
Strengthen the faint-hearted;
Support the weak;
Honor all men and women ["and babies" - my mental addition];
Love and serve the Lord;
Rejoicing in the power of the Holy Spirit

During this difficult season of my life, I felt like our church (and many others in our life) really lived out the charge given in that benediction. Those words nearly brought to tears each time I heard them while I was carrying Joy. Even now, three years later, during the benediction, I often think of this time in my life and the love shown to us.  In many times it was a sad, difficult period of our lives, but there were definite moments of sweetness, and the generosity and care of friends and family was one such bright spot.  "The church" often has a bad reputation in our modern culture, but I think that this was a wonderful example of the church being the church as God designed it.

So that's my charge to you who are reading this post  - Go out into the world and strengthen the faint-hearted; support the weak. While I can't guarantee that it will be this kind of life-changing experience for the recipient of your kindness, I think it's safe to say that more likely than not, it will be appreciated and noted by them in their time of difficulty.  It doesn't have to be something big to feel like something big to someone else.